Monday, January 28, 2013

Teal's the Deal


Did you know that?

Until I was diagnosed myself, I had no idea that January was the awareness month, the ribbon color was teal, or pretty much anything else about the disease because cervical cancer was something that happened to somebody else until it happened to me.  

Nobody talks about cervical cancer. I never see teal ribbons on t-shirts or minivans. ABC doesn't run cervical cancer awareness commercials during Grey's Anatomy. Not even Oprah talks about it.

That needs to change because over 4,000 women die each year from cervical cancer. I know because I was almost one of them.

When I was first diagnosed, I wondered if it was my fault. That's the common misconception about cervical cancer that perpetuates the silence.

Most cervical cancers can be linked to HPV, a virus that 80 percent of women have been exposed to in their lifetime, so it's a little more common than you might think. I've never been a math person, but in this case, I'll make an exception. Let's crunch some numbers:

The 2009 census estimated that over 315 million people were living in the United States and 50.7 percent of them were women. So divide the population in half, calculate 80 percent, that's roughly 126 million women who have been or who will be exposed to HPV. Chances are you might be one of them.  

So why are we not talking about this again?

There are a few things that you can do to decrease your risk for HPV such as, ahem, safety first (please don't make me go into any more detail, mmm'k?) and limiting your sexual partners. These measures do not eliminate your risk for HPV but will reduce it. For example, a thirty-something at my oncologist's office has had only one sexual partner (her husband) but has HPV. It can happen to anyone.

If you are under the age of 25, you can also get vaccinated against the strands of HPV most commonly associated with cervical cancer. Ironically, when my daughter got her vaccination, I had cervical cancer and didn't know it.  

But remember, not having HPV does not eliminate your risk completely. I was never diagnosed with HPV, but I was diagnosed with cervical cancer. I'm the one-percent.

The best thing that you can do to protect yourself against cervical cancer is to have an annual pap smear.

That's how I was diagnosed. I had no risk factors and had never had an abnormal pap. My only physical symptom was feeling a little more tired than usual. I had no pain or bleeding. I walked into the OB-GYN's office without a care in the world.

I expected to get the "everything is fine" postcard in the mail, but instead, I got a phone call to schedule a biopsy. It's sort of the same thing except that one is no big deal and the other one makes you cry yourself to sleep.  

A preventive exam is the only reason that I caught my cervical cancer early. If I had missed an annual pap or two, we'd be having a completely different conversation right now.

Today, I can officially say that I'm a cancer survivor. My second pathology report showed all clear margins, meaning, it looks like they got all the cancer out. I will continue to have tests every three months, but that initial report was pretty crucial.





Several people have said to me, "You're such a fighter; I knew you would beat this." or "Cancer didn't stand a chance against you!".  And although I appreciate the compliment they're trying to pay, those words make me feel so guilty, too.

See, the human spirit is designed to fight, and we all have that fight down deep inside us, but I had early detection on my side, and not everybody gets that chance. If I was diagnosed with Stage 4 cancer instead, my desire to live would not have been any less, but my statistical chances of beating it definitely would have been.

Women, the good news about cervical cancer is that you can catch it early and that's what makes this disease so curable. One preventive exam saved my life and it can save your's, too.

Have you had an exam in the past year? What?! No? Girl, don't make me call your Mama on you!

If you haven't had a preventive exam lately, pick up the phone and make that appointment right now.  Pretty please? It might just save your life.  

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Comments (10)

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Hi! I emailed you a while ago saying that I went and had my pap thanks to your reminder. My pap then came back abnormal and a biopsy showed that I had high grade moderate dysplasia. I had my surgery back on Jan 10th to remove it and just got the pathology report to show that the margins were clear and it looks like all the abnormal cells have been taken out! I have to get paps every three months for a year to ensure it stays all clear but as of now all is good! Thank you again, so much for the reminder. My dysplasia progressed from non existant last year when I had my exam to being high grade moderate within a year and thats scary! So had I continued to forget about my pap it could have gotten a lot further. Im so glad to hear that your margins are clear as well and you are officially cancer free! SUCH amazing news!!
1 reply · active 640 weeks ago
Awww! Yay, Shannon! I'm so happy to hear that you got clear margins! I hope the surgery recovery went okay. Thanks for letting me know how you were doing. I've been thinking about you!
So glad that you are cancer free!!! this is a great message for all women!
So glad you are cancer free! September 2011 I walked into my gyno's office without a care. My dr asked me about a lesion (I didn't even know it was there). She biopsied it - truly one of the most painful things I have ever had done. Diagnosis: a rare form of cancer of the vulva thankfully in early stages. I had surgery to remove it - no lymph node involvement - no further treatment except watching closely. My cancer, too, is tied to HPV and I'm HPV negative. I tell everyone I know now to stay current with their checkups.
I hope it's ok but i put a link to this page on my blog. http://reneesthoughtsandideas.blogspot.com/2013/0...
I hope this message goes around the world like 20 Things A Mother Should Tell Her Son. This is just as important. Your story may save lives. Thank you for sharing. I am going to have my PAP just because of your blog. I had let time get away and it is a little over a year. I really had planned to wait 3 years. But after reading this, I'm going next week. I don't think I'll take good news for granted like before. I'm glad you are well. I'm sorry you have gone through so much. You don't have to call my Mama.
Jill Ashworth's avatar

Jill Ashworth · 638 weeks ago

Amanda, SO happy to hear that your last pathology report showed the all clear, I'm breathing a big sigh of relief and joy for you. God bless! And your points in this post are valid and crucial - just a yearly pap, and a large percentage of those 4000 women per year could be on the other side of the statistic. Soldier on girl!
I had messaged you on Facebook a while back re: an abnormal pap. Had the biopsy, and it came back normal, so I too was breathing big relief sighs : ). Back for a pap in 6 months, hopefully a couple of consecutive normal ones, and then back to the once a year routine.
Hope you're continuing to heal well from your surgery, and finding that each day is even more "normal" (aka sans cervical cancer dealings - excluding awesome advocacy of course) than the last.
Sincerely, Jill
Nice Post
Really nice ninjaessays.org post but I am really sorry that you have gone through with so much but the great thing you fought with your cancer very well and come out from this trauma with the success. Your story can give courage to everyone out there who is fighting with this illness. Thanks for sharing.
This post is written about cervical cancer. Cancer is dangerous disease which told us the means through which you can survive yourself from this disease. You can prevent also. He had given the example of patients of United States of America they are suffering. You can survive by utilizing preventive means mentioned by him.

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